Questions Asked by Potential Donors Like You

The Scientific Registry of Transplant Recipients (SRTR) manages the Living Donor Collective (LDC). SRTR, under contract with the Health Resources & Services Administration of the US Department of Health and Human Services, established a living donor registry that studies the long-term outcomes of living organ donation. This project started with 16 transplant programs (10 kidney and 6 liver) and will expand to include other programs.

The LDC's purpose is for transplant programs to register all living donor candidates evaluated at their center. Information on all of these living organ donor candidates will be entered into a database at the beginning of their evaluation by the transplant center, and aspects of their physical and psychosocial well-being will be tracked prospectively by SRTR.

LDC will follow up about one year after you have had surgery or decided not to donate.

Yes, both donors and non-donors will be followed to monitor their long-term outcomes.

The United Network for Organ Sharing (UNOS) has a living donation portal that contains a wealth of information about all aspects of living donation: the types of living donation, the surgery process, and FAQs. Visit their living donation webpage today for more information.

The American Society of Transplantation (AST) has a group called the Living Donor Community of Practice (LDCOP), which provides toolkits and webinars for those interested in living donation. 

Donate Life America (DLA) is a nonprofit that heads the National Donate Life Registry and informs the public about living organ donation.

HRSA.gov is a US government website that provides organ donation statistics and more.

To learn more, visit the Resources page.

The United Network for Organ Sharing (UNOS) offers the brochure Living donation: Information You Need to Know, which outlines the donation process from the first steps to become a living donor to what to expect post-surgery. 

For more information on living donation and potential risks, visit our Benefits & Risks page.

The American Society of Transplantation (AST) offers a financial toolkit with topics that include insurance, financial aid, and more.

The National Living Donor Assistance Center (NLDAC) helps living donors apply for financial aid for non-medical costs like travel and lost wages and provides additional financial resources.

The American Liver Foundation (ALF), founded by American Association for the Study of Liver Diseases (AASLD), focuses on the treatment and prevention of liver disease and provides a guide on living liver organ donation. 

The American Association of Kidney Patients (AAKP) is a nonprofit organization that helps meet the needs of kidney patients through education, community, and additional services. 

The nonprofit organization American Kidney Fund (AKF) provides materials on kidney disease and choosing to be a living kidney donor. 

The National Kidney Donation Organization (NKDO) educates prospective living kidney donors on safe and effective donation and provides community engagement opportunities.

Not only does the National Kidney Foundation (NKF) review the living kidney donation journey, it also has The Big Ask, The Big Give, a project that helps begin the conversation about living kidney donation. 

The National Kidney Registry (NKR) provides in-depth information on living kidney donation.

Renewal is a nonprofit organization that supports patients with various types of kidney disease to find a living donor.

Visit the Health Resources & Services Administration website for more information on the The Kidney Paired Donation Pilot Project.

The Alliance for Paired Kidney Donation (APKD) advocates for living kidney donors and kidney recipients through paired donation.